Congress in Bulgaria: Michele Romano awarded

In Sofia/Bulgaria, September 11-12, 2021 the VIII National Congress of the Association of Physiotherapists in Bulgaria: “Interdisciplinary approach and current trends in practice” took place. 
Both the current trends in practice on a national and global scale, as well as the future development of the profession in Bulgaria were discussed during the Forum. The scientific program once again provided an opportunity for the exchange of information and innovations in the field of physiotherapy and rehabilitation – national experience and world achievements.
The congress had a special section for the treatment of scoliosis and Michele Romano, head of physiotherapy in Isico, gave two presentations.
One was titled “Scientific Exercises Approach to Scoliosis (SEAS)” and the second one focused on “Scoliosis Manager”: the Isico web tool for patients’ management available free for everyone. In its protected version adapted to Isico’s internal clinical and rehabilitation needs, it is the daily working tool for Isico’s expert professionals. 
Further to giving these two presentations, Michele Romano was awarded a commemorative plaque by the Bulgarian Association of Physiotherapy, who wanted to express with this recognition their gratitude for his ongoing commitment and dedication in the field of physiotherapy.

My brace has helped me to grow up!

I’m Ilaria, and I have spent the past 6 years wearing a scoliosis brace.

At last, on 28/6/2021, after countless sacrifices, many, many moments when it felt like everything was against me, and others when things seemed to be going better, I finally came to the end of my “journey” with ISICO.

In spite of the difficulties I had along the way, as time went by my check-ups became increasingly encouraging, my back stabilised, and I was able to leave my brace off more and more; also, thanks to the exercises, the cosmetic appearance of my trunk improved.

There have obviously been lots of ups and downs over these years, but these have helped me to grow up: I now know that the low points teach you the importance of persevering, of keeping your head held high and always looking for the positive side of things.

Through wearing a brace, I have come to realise that I was a rather superficial person before. However, over time I have matured, and in fact, I learned to really appreciate the true value of situations and times spent both in and out of my brace.

My brace also helped me to appreciate what people really thought of me, and how much they cared about me.

When I first started wearing a brace, in the 4th year of primary school, my classmates and teachers didn’t know at all what it was for or understand why I needed to wear it. For them, there was no point to it, whereas I realised that it represented my “salvation”.
Luckily, over time and in my next school I came across people (classmates and teachers) who knew more about it and were always very supportive.

One very important factor in getting me to the point I’ve reached today was the “brace camp” holiday, organised by ISICO, that I had on the island of Asinara in Italy in 2018. There, I made some lasting friendships and learned that wearing a brace on holiday was no big deal, even if I could only leave it off for a few hours a day.

During that holiday, the physiotherapists taught us that doing postural exercises for our backs could actually be fun. They encouraged us and helped us to “put up” with keeping our braces on for the prescribed number of hours. What’s more, even though we weren’t able to spend very much time with our braces off, we were still able to enjoy the sea and the natural surroundings. They even taught us how to go in the water in a brace.

In the course of this whole experience, I have met many different people, with different stories, and this has helped me to see that while everyone at ISICO is on the same journey, each person experiences and approaches it in their own way.

I want to thank Dr Monia Lusini, who has always been a great support, whatever the circumstances, but my most heartfelt thanks go to my parents, who have always been there for me through thick and thin, supporting me and encouraging me not to give up and always to be proud of myself and persevere.

My parents are amazing, always ready to do anything for me and give me whatever I need.

Finally, I hope the things I have said might be of help to lots of other young brace wearers out there!

My message to them is: stay strong and stay brave because in the end all your sacrifices and hard work will pay off. Before you know it, you will be seeing the light at the end of the tunnel!

And don’t forget! Go in the sea as often as you like… just slip on your brace undershirt, brace and swimming costume and go for it! After all, there’s nothing quite like a refreshing dip ❤️

Bracing + exercises + adherence to treatment = a recipe for successful treatment!

Idiopathic scoliosis is a disease that causes abnormal growth of the spine. Once a spinal curve has appeared, the vertebrae of a young patient are liable to become deformed in the three planes of space. This risk persists until he or she has finished growing.
Through conservative treatment, we aim to ensure that our patients, as adults, will have a strong back. In other words, we want them to reach adulthood with a healthy and functional spine, and that does not necessarily mean a perfectly straight one!

Therapy is therefore undertaken in order to try and limit the natural worsening of scoliosis curves through treatments proportionate to the severity of the condition.

To this end, there exist two main methods: specific physical exercises and bracing, and both need to be applied correctly and with the necessary adherence to treatment.

To decide whether a young patient needs to be prescribed a brace, the treating physician considers a series of factors, for example the size of the curve, the patient’s bone age, and whether or not he/she presents asymmetries (of hips, pelvis, scapulae, shoulders and so on).

When bracing is deemed warranted, we urge our youngsters to adhere scrupulously to the instructions given in order not to compromise the effectiveness of the treatment, and indeed to obtain the best possible correction.
This means that they must fasten and tighten their brace correctly, as shown by our doctors during the testing phase. If they do this, their brace will be less visible under their clothing; it will also be less prone to move about when they are walking, running and even sitting, and therefore more comfortable.

In addition to being more visible under clothes, a brace that is worn too loosely is less effective: it will not give the results that would have been achieved by wearing it properly.

According to data we have gathered, bracing treatment should produce its most marked results in the first months, and adhering to the prescribed number of brace-on hours is what makes the difference in this regard.

Bracing treatment is always prescribed together with specific physical exercises, i.e., 15-20 minutes per day of spinal self-correction and stabilisation exercises that help patients get into the habit of regularly correcting their posture themselves, even during the hours they are permitted to leave their brace off. 

We constantly remind our patients that whenever they remove their brace, self-correction becomes all important, and that “voluntary and active” self-correction works just like the brace itself does. Clearly, though, this demands good self-awareness on their part and a willingness to collaborate.

In “Specific exercises performed in the period of brace weaning can avoid loss of correction in Adolescent Idiopathic Scoliosis (AIS) patients: Winner of SOSORT’s 2008 Award for Best Clinical Paper”, we  showed that patients who regularly did specific exercises obtained a stable result when they finally stopped wearing their brace. Instead, those who did specific exercises discontinuously showed a worsening of a few degrees, while the curves of those who did no exercises at all worsened by an average of 10 Cobb degrees or more.

And it is important to remember that all these patients were prescribed the same type of brace, and the same number of bracing hours.

Brace weaning, which is carefully monitored by the physician, must be done extremely gradually, as the spine needs time to adapt to the absence of an external support. This is particularly true in the case of patients treated for very severe curves. During this delicate phase, self-correction exercises become even more important, helping to prevent the spine from once again collapsing in the direction of the curve. 

We often say that strength comes from within: a patient’s own determination to wear his/her brace consistently and do his/her exercises correctly will together help to ensure that conservative treatment is a success – and it is important to understand correction of the scoliotic curve is not the only measure of success. Success also means stabilising the curve and curbing its tendency to worsen as the patient grows.

Free Pelvis Brace works: this is demonstrated by the study presented at Sosort

At the latest Sosort international conference, held a few months ago, Isico presented the study Increasing Brace Comfort, Durability and Sagittal Balance through Semi-rigid Pelvis Material does not change Short-Term Very-Rigid Sforzesco Brace Results.
For years, Isico has replaced plaster cast with the Sforzesco brace, a particular type of very rigid brace for the most demanding scoliotic curves: developed in the Institute itself in 2004, it obtained results equal to casting, highlighted in several published studies.
The Sforzesco brace is a way to avoid casting for severe curves, because of the significant costs involved both at the individual (side effects including cast syndrome, skin problems, significant psychological impact, inability to shower for months, etc.) and social (repeated inpatient treatments) levels.
“In recent years, thanks to the experience with the Sforzesco brace, we have worked to improve our brace – explains dr Francesco Negrini, physiatrist, and one of the authors of the research presented at Sosort – We have therefore recently introduced a particular innovation, the system “Free Pelvis”, which consists of releasing the pelvis corset using a less rigid material at that level, increasing comfort while wearing. The “Free Pelvis” system is a very important innovation, a potentially big step forward in conservative treatment of scoliosis”.
The study presented compared the Sforzesco brace classical version (VRB) versus the Free Pelvis one (FPB): “The results obtained showed us that the Sforzesco “Free Pelvis” has no inferior results to the classic Sforzesco – concludes dr Negrini – furthermore it reassures the effectiveness of the Sforzesco “Free Pelvis”, and allows us to continue with greater confidence and conviction in the process of introducing this new and revolutionary instrument into our regular clinical practice”.

Andrea’s story

Hi, I’m Andrea. It’s now been nearly two years, and I finally feel ready, and brave enough, to speak out.
Over time, I have come to realise that people are often judged for the way they look and not for who they really are. So, I may not have a six-pack with super-toned abs, and I haven’t got a straight back like other teenagers, but to be honest, none of that worries me anymore.
It is the people who can see your worth without bothering about your appearance who really love you for yourself. I am now half-way through a journey that seemed endless to begin with. I spent an entire year wearing this thing for 23 hours a day.
I had to cope with a whole summer when I couldn’t spend more than an hour a day by the sea, and holidays when I couldn’t do what everyone else was doing, and I was always finding excuses not to go out simply because I was too ashamed to admit that I had, and have, this “problem”.
Now, though, I am perfectly happy with who and what I am, and I know that the people who really care about me will continue to be there for me come what may.
I’d like to dedicate these few lines to myself, to acknowledge the fact that, after the initial tears and the anger at not being able to have a “normal” adolescence, I have finally grown self-confident enough not to feel ashamed.
This is not one of life’s real problems, it’s just an obstacle I need to overcome in order to become a better person. I am proud of who I am today. 

ISYQOL: Polish adaptation study published

The study Polish Adaptation of the Italian Spine Youth Quality of Life Questionnaire has just been published (Edyta Kinel, Krzysztof Korbel, Piotr Janusz, Mateusz Kozinoga, Dariusz Czaprowski, Thomas Kotwicki), developed by the University of Medical Science of Poznan and from Olsztyn University, Bydgoska for the adaptation of our Italian Spine Youth Quality of Life Questionnaire (ISYQOL) into Polish (ISYQOL-PL).

Recall that ISYQOL is the questionnaire developed by Isico that measures the health-related quality of life of adolescents with spinal deformities and has proved particularly appropriate in patients with adolescent idiopathic scoliosis (AIS) not treated surgically.
The questionnaire is available for free online on a dedicated website, where you can also find the English and Polish versions of the questionnaire:   https://www.isyqol.org

The study aimed to carry on the process of the cultural adaptation of the Italian Spine Youth Quality of Life Questionnaire (ISYQOL) into Polish (ISYQOL-PL). The prior hypothesis was: the ISYQOL-PL questionnaire is reliable and appropriate for adolescents with a spinal deformity. Fifty-six adolescents (mean age 13.8 ± 1.9) were enrolled.
The ISYQOL questionnaire is based on patients’ concerns and has been shown to be particularly appropriate in AIS and SJK patients undergoing non-surgical management. The ISYQOL is a 20 items questionnaire. The process of the cross-cultural adaptation of the ISYQOL-PL was performed following the guidelines set up by the International Quality of Life Assessment (IQOLA). The implementation of this method includes the following steps: forward translation, back-translation and expert panel, pre-testing and cognitive interviewing, development of the final version. The total sample size was decided based on previous recommendations for validation studies.

What about study’s conclusions? “The ISYQOL-PL is a brief and practical tool for quantifying HRQoL in adolescents with a spine deformity – comments the coordinator of the study, the spine surgeon Dr. Tomasz Kotwicki from the Department of Spine Disorders and Pediatric Orthopedics –  Filling in the questionnaire takes less than 10 minutes to be completed. The ISYQOL-PL questionnaire is reliable and can be used in adolescents with spinal deformities”. 

Full text available here:  https://pubmed.ncbi.nlm.nih.gov/34066225/

Simona’s story

Hi, I’m Simona, and, like many of you, I wear a back brace. My “brace-wearing” journey began some years ago. To be precise, it was 26 October 2017 when I got my first Lyon brace. How could I forget it?!

I had discovered my scoliosis in May that year, after suddenly realising, during a PE lesson one day, that there was something wrong with me. During a run, I felt a very sharp pain in my shoulders, so I stopped and asked my PE teacher what might be the reason.

 She asked me to bend forwards, and after checking me over and getting me to do some movements, she said I had one shoulder higher than the other.

After talking over the problem at length with my parents, we went to a hospital to see an orthopaedic specialist. Needless to say, it was a disaster, partly due to the doctor’s lack of empathy: according to him, I needed to wear a Milwaukee brace for 18 hours a day!

The first time I saw an X-ray of my back, I was shocked, as I hadn’t seen anything like it before. I felt like a freak, also because up until that point, I had never even heard of scoliosis. I had no idea what it was. After realising that this doctor would not be at all interested in helping me cope with the considerable psychological impact of having to wear a brace (and I could already see that this was going to be considerable), my parents and I decided it would be better to consult another doctor.

That is what we did, and we couldn’t have found a better one! He turned out to be the best doctor ever: from our very first meeting, he always wanted to hear my opinion, even though I was still only young.

Thanks to him, I was able to embark on this bracing adventure with much more peace of mind. He prescribed me a Lyon brace with a removable neck support (8 hours of wear per day) to treat my cervical spine too and a right shoe-lift. Since then, I have had two new braces and two new shoe-lifts, and the treatment has reduced my degrees of curvature considerably. 

I can’t deny that having to wear a brace still had a strong psychological impact on me, but with the help of my family, my physiotherapist and my doctor, I managed to cope. And even though it’s not over yet, I know that the worst part is now behind me.

 I am very proud of all that I have achieved. My message to anyone else who wears a brace, or needs to start wearing one, is this: wear it as much as you can, and always for all the hours your doctor tells you to! The reason I have improved so much is that I have always worn mine even more than I had to. You’ll probably be really amazed to learn this, but I have actually decided that I want to train to be an orthopaedic specialist one day! 

Yesterday, I told my doctor this, and he was surprised. But it’s true! He has always been so kind and understanding with me. Thanks to him, I have even grown quite fond of my “condition”!  So, make sure you find a good doctor, and above all, one who treats you not as a laboratory animal but as a person who needs more than just physical attention. One day I want to be able to help other people get through what I have been through, and I’m still going through. If I succeed, I’ll be really proud of myself! 

I know this is rather a long message, but I have been a reader of this blog for so long now. The doctors who write it have often given me the answers I needed, and since it has often helped lift my spirits in blacker moments, I decided I should now share my story in the hope of encouraging others too!

eSosort2021: ISICO awarded for the third time in a row

And the winner is: Isico! For the third consecutive year, our Institute has been awarded the highest international recognition for those involved in the rehabilitation treatment of vertebral pathologies. On Saturday, May 1st, on the occasion of the annual SOSORT conference, this year in online mode due to the pandemic, our studio “Efficacy of bracing in infantile scoliosis. A 5.5 years prospective cohort shows that idiopathic respond better than secondary” was awarded the SOSORT Award. 

It is not the first time, because only in the last two years Isico has won the coveted international recognition for the best research by SOSORT, to which is added, in 2019, the award won as co-authors of a research study in collaboration with the University of Hong Kong. A truly unique continuity.
“An award that once again certifies the high quality achieved by the scientific research carried out in our Institute at an international level – explains Prof. Stefano Negrini, scientific director of Isico and first author of the awarded research (the other authors are Dr Sabrina Donzelli, Dr Greta Jurenaite, Dr Francesco Negrini and Dr Fabio Zaina) – through this research the main goal was we have set ourselves the goal to check the results in the medium term of bracing of infantile scoliosis, comparing the two groups: idiopathic and secondary scoliosis.”
According to Mehta results, casting is considered the gold standard conservative treatment for infantile scoliosis, still casting requires repeated general anaesthesia, and recently doubts have been raised that this could cause potential brain damages in the long term. 

“In our Institute, we have been using bracing for a long time to reduce invasivity for the patient – says Prof. Negrini – Moreover, the results of the Sforzesco brace have shown to be similar to casting in adolescents. Thanks to the clinical and research experience gained over the years, we have developed a retrospective study in a prospective cohort. We have been using braces since 2004 and have been able to present the largest case history on braces to date (34 patients), with an average follow-up of 5 years, documenting excellent results in idiopathic scoliosis (success in 50% of cases – only one failure), while in those secondary to other pathologies it is possible to delay surgery over time even in the face of more frequent failures (surgery inevitable in 20% of cases)”.
We remind you that infantile scoliosis is very rare, about 1 case in 10,000 children, and for this reason, it must be treated by very expert and dedicated specialized clinics with specialists who  have been managing spine deformity for long and have a rich clinical experience
“In this context, we are also the only Italian structure that is participating in an international multicentre study, which involves clinical centres in 40 countries around the world, to verify the effectiveness of braces compared to casts – concludes prof. Negrini – During the two-year duration of the project, we will bring about 5 cases treated at our Institute for research purposes. Isico has several years of experience in the use of braces, our participation will not include the application of casts, but our results in bracing will be compared with those of other centres that apply casts”.

Online congress in Brazil for the month of scoliosis

On behalf of the “Green June 2021 – Organisation Committee” from the Brazilian Scoliosis Treatment Society (Sociedade Brasileira de Tratamento da Escoliose – SBTE), the 1st online Brazilian Scoliosis Congress will take place in June from 25th to 27th.
“This initiative is unprecedented in Brazil and tries to provide quality information – comments Isis Navarro, physiotherapist cooperating with the organizer- in this way, we want to promote awareness of scoliosis for patients, families, students and professionals”.
Three Isico scoliosis experts have been included among the international speakers in the online event: Dr Sabrina Donzelli will give a presentation focusing on the current evidence in the conservative treatment of scoliosis; Michele Romano, Isico physiotherapy director, will give a lecture on the SEAS approach, while Alessandra Negrini, an Isico physiotherapist as well, will talk about “Sports and Scoliosis”.
For more information and for registration please follow this link 

Dress green with us in June!

As every year, Isico dresses in green throughout June with a particular initiative. During the four weeks of the month, we will launch mini videos with the “Best” of each edition of the Concorsetto, the Isico competition dedicated to those who wear the corset to offer a series of testimonials from those who live with the corset in their daily lives.
Recall that National Scoliosis Awareness Month occurs every June to underline the importance of early diagnosis and public awareness of scoliosis and its prevalence within the community.
Initialised more than a decade ago by the Scoliosis Research Society, the oldest scientific society dealing with scoliosis, founded in 1966, this campaign aims to raise public awareness of scoliosis and related spinal deformities through educational campaigns and the defence of local activities and community events during June and throughout the year.
There is a green ribbon to characterise the campaign throughout the month and a day for this 2021 edition, June 26th, to tell the own story, a personal one or that of a friend or a family member, to spread the awareness of the existence of this pathology.
Everyone can participate in the campaign, just like us at Isico: sharing the green ribbon on the social profile, posting participation or even only a photo or a story are all ways to make this pathology known. Or follow our Social profiles and share our mini-videos “The Best of Concorsetto”, with the hashtag #scoliosisawarenessmonth.
Knowing about scoliosis is already a first important step towards its recognition; the sooner this happens, the better it is to be able to intervene with adequate therapy.
Mark the month of June in green and leave your green mark on June 26th!

Here you have the full video The best of Concorsetto