Physical activity in adults with scoliosis: what and how much?

Before we start talking about scoliosis and physical activity in adults, a few background considerations are called for.

It is important to remember that every patient has a unique history. Even though different patients can present similar scoliosis features, it should not be assumed that the same kind of physical exercise will suit all of them.  

It is also necessary to bear in mind certain thresholds of curvature: scoliosis curves measuring less than 25°-30°, especially if treated in adolescence, are extremely unlikely to worsen over time. Conversely, curves that exceed 45°-50° must be monitored, through specialist check-ups, throughout adulthood.

Then there is the “pain” factor. Scoliosis is not necessarily associated with pain. Nevertheless, pain is a factor that needs to be taken into account when choosing what physical activity or sport to do. As a rule, any kind of movement that does not worsen pain, or that alleviates it, can be considered a great help.

Exercise, in a general sense, helps to relieve pain, improve functionality and improve quality of life: and these are the real objectives. A healthy back, which does not necessarily mean a straight back, is one that is capable of withstanding the stresses of everyday life.
Furthermore, when you have scoliosis, it is especially important to train the muscles that support the spine, so as to stabilise it.

It is important that we distinguish clearly between sport and self-correction exercises i.e. active movements designed to lead to better positioning of the spine in the three planes of space, which the patient performs independently.
These exercises, prescribed specifically for scoliosis, with the aim of stabilising the condition, serve a therapeutic purpose. On the other hand, there is no sport or general physical activity of any kind that can be said to “treat” scoliosis.

It is also necessary to beware of certain old “beliefs” regarding scoliosis and sport. In the past, it has been claimed that certain sporting activities can “treat” or vice versa exacerbate scoliosis.

In reality, however, the literature contains no reliable data showing that certain sports activities might be harmful for adults with scoliosis.
The only question mark concerns activities (e.g. belly dancing) that demand considerable flexibility and mobility of the spine, since these could destabilise it and lead to a worsening of the condition.
To date, there are no sports that are specifically prohibited or recommended. Indeed, contrary to what some believe, swimming and Pilates cannot be guaranteed to be beneficial, while running and tennis do not need to be considered risky activities.
In adulthood, any sport, providing it is started gradually, practiced regularly, enjoyed and performed within your own limits, can only be good for you.

In conclusion, it is worth underlining that adults with scoliosis can and MUST do some form of physical activity, at least 2-3 times a week, choosing from the various disciplines. Those whose scoliosis causes them pain must make sure their chosen activity respects this limitation.

A Brace classification study

The study Brace Classification Study Group (BCSG): part one – definitions and atlas, published by Scoliosis and Disorders,  represents the first part of the SOSORT consensus in addressing the definitions and providing a visual atlas of bracing.
Prof. Stefano Negrini, Scientific Director of Isico, is one of the authors who belong to a panel of professionals named the Brace Classification Study Group
Prof. Negrini explains: “The current increase in types of scoliosis braces defined by a surname or a town makes scientific classification essential. Currently, it is a challenge to compare braces and specify the indications of each brace. A precise definition of the characteristics of current braces is needed“. 
As such, the International Society for Scoliosis Orthopedic and Rehabilitation Treatment (SOSORT) mandated the Brace Classification Study Group (BCSG) to address the pertinent terminology and brace classification.
The BCSG introduced several pertinent domains to characterize bracing systems.
The domains are defined to allow for analysis of each brace system. The BCSG has reached a consensus on 139 terms related to bracing and has provided over 120 figures to serve as an atlas for educational purposes. 
During the annual meeting of the International Society for Scoliosis Orthopedic and Rehabilitation Treatment (SOSORT) in Athens in 2008, Prof. Negrini presented a new classification under the acronym BRACE MAP.
BRACE MAP derives from the following terms: Building, Rigidity, Anatomical classification, Construction of the Envelope, Mechanism of action, and Plane of action. Each item was composed of two to seven classificatory elements defined using one or two letters in order to refer specifically to the characteristics of the brace throughout the classification.  
“A visual atlas of various brace types is provided – ends prof. Negrini – This is the first clinical terminology tool for bracing related to scoliosis based on the current scientific evidence and formal multidisciplinary consensus”.

My kid is always slouching: bad posture or a medical problem?

In today’s digital age, the incredible exponential curves of technological growth and innovation are increasingly reflected in curves of another kind, namely those affecting our spines, as we assume various odd and unnatural positions when using our electronic devices.  

Parents are the first to notice their youngsters’ tendency to adopt these awkward and unattractive positions. The most frequent is the hunched back position, where the upper spine, shoulders and head are bent forward in relation to the rest of the body.
Consequently, we now see countless humps like that of Quasimodo, the famous “Hunchback of Notre Dame”.

The tendency to slouch or adopt slumped postures is prevalent among the young. Youngsters (and adults too) often assume incorrect postures simply because it is easier and requires less effort.
As a result, they allow the force of gravity to take its toll on their backs without trying to counteract it. 
Some situations, however, require careful assessment, as incorrect postures can sometimes indicate a spinal disorder.

Initially, it is up to parents to check their children’s backs, and if they have any doubts at all, they should seek the opinion of expert medical spine specialists.

How do you tell the difference between incorrect posture and a spinal disorder?

If you have the youngster stand in front of you with his/her back exposed and look at him/her sideways on, you should immediately notice the classic shape of the back, created by two natural and opposing curves; starting from the base of the spine and moving upwards, you will see the first, lower curve.
Known as lumbar lordosis, this is a physiological curve in which the lumbar spine appears more anteriorly positioned and concave. Immediately above it, you will see that the dorsal spine instead shows a posterior convex curve.

In normal conditions, these two curves are harmonious and not too pronounced. However, if, on observing the youngster, you notice that one curve is more pronounced or protruding or that both are marked, then this could be a sign of a spinal disorder. In such cases, screening by a qualified professional or a consultation with a specialist spine doctor is strongly recommended.

In the same way, you might notice that the youngster’s back appears flat, with the physiological curves barely visible or not visible at all. This profile, too, can indicate the presence of a spinal disorder.

The spinal disorder most commonly associated with the rounded back or hunchback posture is hyperkyphosis, i.e. excessive curvature of the thoracic spine, evident on clinical examination as posterior protrusion of a section of the thoracic spine, often with the protruding vertebrae clearly visible under the skin.  

But how can a parent distinguish between incorrect posture and hyperkyphosis, a fairly frequent condition among youngsters?
Incorrect posture is always easily remedied simply by reminding the youngster to stand up straight: indeed, in this case, this action is enough to straighten his/her back completely.
In the presence of a spinal disorder, on the other hand, he/she will show more or less marked stiffness: even when he/she tries to stand up straight, part of the spine will remain curved due to the disease having stiffened his/her back.

Long kyphosis is another frequent vertebral alteration. In this case, the thoracic convexity extends down as far as the lumbar vertebrae, invading the space normally occupied by the upper part of the lumbar lordotic curve: the back, therefore, presents with a long convexity that reaches down to the base of the back.

Dorsal hyperkyphosis and long kyphosis are sometimes caused by Scheuermann disease, which is characterised by a wedge-shaped deformity of the vertebral bodies with anterior thinning of the vertebrae.
This makes it difficult and sometimes impossible for affected youngsters to hold their back straight: as a result, they become curled up like hedgehogs, and unfortunately, their growth exacerbates the vertebral deformity.

Conclusion

Like scoliosis, spinal deformities in the sagittal plane must be diagnosed early to allow timely and effective treatment. Families have the important task of trying to spot spinal disorders instead of simple cases of poor posture. Whenever they are in any doubt, they should always contact a specialist spine doctor for a proper diagnosis and necessary treatment. 

Pain perception? It’s also about the mind

A very nice patient of mine, who suffers from low back pain, recently left my studio, after a check-up, with a prescription for a psychological consultation as well as one for specific physiotherapy sessions.

Judging by the look on her face, she was clearly thinking “but my pain is for real, I’m not making it up!”.
This is the reaction I have also had from several other chronic patients when trying to explain the concept of “central sensitisation” to them.

So, let’s try and clear up this question. It is necessary to understand that pain acts as a defence mechanism for the body, as it allows us to understand if, and when, we are in danger.

This mechanism can sometimes end up not working efficiently, producing either not enough pain or too much. In the first instance, we have a problem: if we are unable to perceive danger, we run the risk of doing ourselves serious harm.

In the second case, on the other hand, even non-painful stimuli, such as a light pinch or normal movements, cause us pain.

Such excessive pain is due to nerves in the body that have become too sensitive and fire too easily.

At an early stage after a trauma it is a physiological, ie normal, event due to the brain releasing chemicals that make the nerves more sensitive.
Essentially, pain is, as we have said, a protective mechanism whereby the brain reminds us to be careful with the part of the body that has just been damaged. This kind of pain is reversible and wears off in the space of a few weeks.
Sometimes, however, this protective response can persist longer than it should, to the point of interfering with our perception of pain.

In the literature, this phenomenon is termed “central sensitisation” and it can be compared to a badly set home alarm system that tends to be triggered unnecessarily.

So, signals of peripheral origin can lead us to perceive pain without real cause, or transmission errors can occur centrally. In other words, the problem can lie with our brain incorrectly modulating how much pain we feel.

It is now common knowledge that stress, sleep disorders and depression can negatively influence healing and favour chronicisation. This is why it is important, when faced with chronic patients, also to investigate all the psychological factors that can come into play. 
As a further consideration, literature data show that even the most powerful painkillers currently on the market are able to reduce pain by no more than 30-40%, and do so in no more than 50% of patients.  

In short, the pharmacological approach alone may not be sufficient for treating chronic pain. It can therefore sometimes be necessary to use complementary psychological approaches designed to help patients manage their pain in a more adaptive way, and understand how an individual’s relationship with his pain influences its intensity and the limitations it brings.
They need to appreciate that the brain plays a key role in our perception of pain, and that this perception merely reflects the way it is being processed.

In addition to the perceptual aspects described above, pain also has an experiential component that is entirely personal and subjective; in other words, emotional, cognitive and socio-cultural factors come into play influencing our experience of pain. If we step on a drawing pin, for example, our brain will register pain, but if we step on the same drawing pin while escaping from a lion, our brain may not register any pain at all. 

Many patients really need to understand the true cause of their back pain, even though it is notoriously difficult for us to establish whether it is a bone, joint, muscle or nerve problem. Often, it is none of these, being due, rather, to an area that is working badly and needs to be re-educated to withstand loading. But patients can find it very hard to understand and accept our explanations of how the brain, too, plays a decisive role in the whole experience of pain.
When we tell a patient this, we are not saying that they are inventing their pain, only that there are highly complex mechanisms that can come into play, which must be understood and, if necessary, reset in order to manage the condition.

Nowadays, the scientific community shares the view that patients are more than just the result of their X-rays or MRI scans; that the detection of a herniated disc means nothing unless it is seen in the context of the patient’s clinical conditions and symptoms. We need to stop telling patients, on the basis of these examinations, that their back is in poor shape or looks like that of a 90-year-old woman, because such negative messages serve only to feed a vicious circle that can be difficult to break.
The idea of having a broken, fragile and irreparably damaged body will only make the pain even more entrenched, and condition other aspects of the patient’s life, causing them to limit their movements or physical activity.

And these, too, are responses that can contribute to the persistence of pain.

ISICO Telemedicine described in a recently published article

ISICO’s use of the telemedicine approach during the COVID-19 emergency and the data collected in relation to that experience are the focus of a new article by our team, Feasibility and acceptability of telemedicine to substitute outpatient rehabilitation services in the COVID-19 emergency in Italy: an observational everyday clinical-life study, which has just been published in Archives of Physical Medicine and Rehabilitation.

“This is a hugely important publication,” remarks Prof. Stefano Negrini, scientific director of ISICO, “as it testifies to the work done by ISICO right at the beginning of the COVID-19 crisis when, in our daily clinical work, we switched to the telemedicine modality in order to avoid having to interrupt the care and treatment of many of our patients”.

Here are a few figures: the article examines data collected over a 15-day telemedicine period, during which 325 teleconsulations and 882 telephysiotherapy sessions were provided. Instead, over the entire lockdown period, the remote sessions numbered 3,231 in total, i.e. 2317 telephysiotherapy sessions and 914 teleconsulations. These are impressive numbers, especially if we consider the high level of patient satisfaction recorded (2.8/3).

ISICO has longstanding experience in caring for and monitoring young scoliosis patients (children and adolescents) living all over Italy and also abroad. Precisely for this reason, i.e. in order to find a way of allowing farther-flung patients to travel to the centre less often, it has already experimented with various telemedicine tools. 

In fact, over the years, ISICO patients, some even living in other continents (such as Australia and the USA), have been able to follow long-term treatment programmes, thanks to the availability of online consultations.

Therefore, our temporary recourse to online consultations and treatments following the COVID outbreak and during the subsequent lockdown did not constitute a completely new experience, but rather a speeding up of a process that was already under way. 

“This strategy aims to decrease the heavy impact on the health systems and allow hospitalisation and intensive care of the huge number of patients in need, thereby reducing the overall mortality” explains Prof. Negrini. But “the COVID-19 emergency is hitting hard not only infected patients, but also all the others. In many countries, outpatient services have been fully closed due to the need for physicians to treat COVID-19 patients, and also to reduce the risk of infection linked to travelling. This has left outpatients are on their own and mostly self-managing. This is not acceptable for diseases that can still show sudden, important progressions, even in the space of a few months, and it is even less acceptable in children.”

How did telemedicine at ISICO work? The telemedicine services consisted of teleconsultations and telephysiotherapy sessions, which lasted as long as usual interventions. They were delivered using free teleconference apps, caregivers were actively involved, and interviews and counseling were performed as usual. 
Teleconsultations included standard, but adapted, measurements and evaluations by video and using photographs and videos prepared according to specific tutorials and sent in beforehand.  During telephysiotherapy sessions, new sets of exercises were defined and recorded as usual.

In the article, we considered 3 phases: the first covers the usual services delivered, over a period of  30 working days (January 7th to February 23rd), prior to the discovery of the spread of COVID-19 the second phase (February 24th to March 14th) was the one in which COVID-19 began to impact  on our usual services, but before we started using the telemedicine approach; finally the last data analysed refer to the 15 working days from our introduction of exclusively Telemedicine consultations (starting from March 16th)

What came out of the study?

That “Telemedicine is feasible and allows us to keep on providing outpatient services that meet with patients’ satisfaction. In the current pandemic,” Prof. Negrini concludes, “telemedicine has been shown to be effective in specific areas of care, particularly where technology is involved. To our knowledge there are no published results about the application of telemedicine to patients with spinal deformities,” and the publication of this article shows that “this strategy can provide a viable alternative to closure of many outpatient services”.

Now screening comes online!

Isico launches online screening. Just connect to the dedicated screening website and you can perform a quick and simple assessment and check whether, with respect to pathologies such as scoliosis or curved back, it is appropriate to carry out a specialist medical visit that investigates further.
The idea, which has been in the works for some time, has had a further stimulus thanks to the departure of Telemedicine during the Covid-19 emergency period. We know how essential an early screening is to set up adequate rehabilitation therapy in case of vertebral deformities.
At Isico, screening has always been done, free of charge for the siblings of our patients. Now the novelty is given by an additional online tool that everyone can access as well in several languages; in addition to Italian and English, the German version is now available as well. 
How does the site work?
After viewing a short explanatory video of Michele Romano, head of physiotherapy in Isico, the evaluation begins either for scoliosis or for the curved back. 
The process is always guided by an introductory video given by Michele Romano. He explains how to make a part of these evaluations through observation only, others where you are asked to take measurements with a ruler and others again to be detected with the help of a simple bottle of water, the Torsion Bottle. 
On the basis of the data entered, it will be possible to know if it is appropriate to contact the evaluation of an expert in vertebral pathology or if there is nothing at the moment to worry about.


The next steps?
Translating the site into other languages ​​so that more people can use it easily. In this regard, we will be pleased to accept those who want to collaborate with us for the translation into other languages, in case you contact the email: isico@isico.it

SEAS: partial resumption of the courses

Our SEAS courses have not yet been able to restart in full due to the Coronavirus emergency. At the end of August, however, we managed to be present in Slovenia where Michele Romano, director of physiotherapy in Isico, held a first-level course: about twenty participants were allowed to participate to keep the necessary distances and respect the safety protocols. Enthusiastic participation, despite having had to limit the interaction than usual.

After the Slovenian course, Romano was engaged in two SEAS online courses for a number of Russian participants.

A fundamentally important role in the success of this event was played by Dr Dmitry Gorkovsky, who, since 2016, has worked with us on the staging of eight previous courses in various Russian cities: Moscow, St. Petersburg and Novosibirsk.

Michele Romano gave practical demonstrations using a Dummy via Skype and Dr.Gorkovsky replicated these exercises with volunteers from among the participants.

How often should a brace be changed?

Receiving their first brace is a key moment in the treatment of youngsters affected by spinal deformities.
This is the brace that shows them exactly what the treatment consists of. They learn about the pads, which are carefully positioned to correct their back; they become familiar with the fastener and how to adjust it to the right tightness, as well as how the brace sits under the armpits. They also have to get used to the shoulder pads and, quite simply, the weight of the plastic.

Surprising as it may seem, some youngsters even grow quite attached to their first brace as, over the weeks and months, it starts to become a part of their daily life and less of a problem. This “friend”, which they sometimes find irritating, especially early on, gradually feels less and less bulky, and in fact there will eventually come a point when it is too small. After all, while the brace stays the same, the youngster inside it grows of course!

For this reason, a new brace will be needed from time to time. It certainly isn’t possible to use the same one from the start to the end of the treatment. But there are also other reasons why a brace needs to be replaced, the first and most obvious being that, like any object used on a daily basis and for a number of hours each day, it starts to wear out. Indeed, after a time, it is subject to breaking, or some of its parts may no longer be intact.

A further reason, and this is perhaps the most important, is that the brace, especially the first one, moulds the youngster’s back so much that after a few months it becomes necessary to construct a new one adapted to its changing volumes. Unless braces are updated to take this aspect into account, they simply cannot work at full efficiency.

The young scoliosis patient’s back changes not only as an effect of the brace, but also because he/she is normally still growing.
In this stage of development, it is perfectly normal to get taller and heavier. A brace can usually tolerate slight increases in height and weight, but when these are more marked it will start to feel uncomfortable. Even just looking at the youngster in his/her brace can be enough to tell you that the time has come to start thinking about getting a new one made.  
From the second brace onwards, more time can usually elapse between braces. It may even be enough to get a new one about once a year.

Youngsters are often anxious at the prospect of changing their brace, fearing that the new one will be uncomfortable. Actually, however, they are unlikely to experience the same discomfort they had at the very start of the treatment.
In fact, in most cases they will find the new brace is more “comfortable”, given that it replaces one that had become too short and tight, and so no longer adequate. Furthermore, having already had to get used to wearing a brace, these “experienced” patients will be better able to recognise, quickly, any problems with the new one.
This will allow them to give the orthopaedic technician clear feedback, useful for making it fit better.  

A comparison of the Chêneau and Sforzesco braces

Unfortunately, it has become common to think of braces in the same way as we do drugs. But before we go any further, we need to make one thing clear: whereas we all know that aspirin is not the same as paracetamol, in the case of a brace, the name doesn’t really mean anything specific.
A brace is a product that is made-to-measure for the individual patient, and therefore the success of bracing treatment depends not on the name of the brace, but on how correctly it has been constructed for the particular patient. If the pads are incorrectly positioned, or if the brace is constructed so that it sits too low or presses too much on one side, it may even contribute to worsening rather than improving the scoliosis. 

The names of the different braces, therefore, are meaningful only to those who prescribe them. 

Finally, adding to the confusion, Dr Chêneau gave his name to two completely different types of brace: the first Chêneau is much more symmetrical than the second one, which, on the other hand, is clearly asymmetrical. Although the second Chêneau brace is the one most commonly used worldwide, we prefer to use the first one, for two reasons: first of all, it is discreet (practically invisible under clothes) and second, in constructing it, we are able to apply the same principles that characterise the Sforzesco, which is the brace developed at our own centre. For this reason, the Chêneau that we use at Isico has been given a new name: we call it the Sibilla- Chêneau, in honour of Dr Sibilla, a pioneer of our school.

So, how do the Sibilla-Chêneau and the Sforzesco differ? They differ in several features, which determine the choice of one over the other on a case-by-case basis. The decision to prescribe one type of brace rather than another must always be taken by a medical specialist.

Let’s start with the material: the Sibilla-Chêneau, used at Isico, is of monovalve construction and it is made of polyethylene, whereas the Sforzesco has two valves and is made from a much more rigid material. Its two parts are linked to posterior fasteners, and there is sometimes an aluminium rod at the back, too. Being more rigid, the Sforzesco has shown the same efficacy as the old system of plaster casting, but with the huge advantage of being removable for bathing/showering.

The Sibilla-Chêneau tends to be used to treat milder cases with less rigid scoliotic curves; it is also preferred for pre-pubertal patients. The Sforzesco, on the other hand, is used for more severe scoliosis with more rigid curves (for example, in youngsters with greater bone maturation). 

In some cases, patients start off with a Sibilla-Chêneau brace but subsequently switch to a Sforzesco one if the scoliosis becomes too aggressive (a decision reflecting the concept that the treatment should evolve gradually): on a hypothetical treatment scale, we can say that the Sforzesco (a super-rigid brace) is one step up from the Sibilla-Chêneau (a rigid brace).

At Isico, both these braces are prepared in accordance with the SPoRT (Symmetrical, Patient-oriented, Rigid, Three-dimensional) concept of bracing.

 “Symmetrical” means that the brace, externally, appears almost perfectly symmetrical, which makes it unobtrusive and helps to replicate the natural shape of the human body. In other words, for aesthetic reasons, it is outwardly symmetrical. By contrast, internally the brace acts asymmetrically, exerting a three-dimensional corrective action on the deformity. 

The brace is defined “Patient-oriented” on account of its wearability, and therefore tolerability. Being very closely fitting, it moves with the patient, and it does not restrict arm and leg movements at all. Furthermore, since it is easy to conceal, patients accept it readily, rather than merely putting up with it.

The term “Rigid” refers to the type of material used.

Finally, “Three-dimensional” refers to the corrective action of this type of brace on the spine; technically speaking, the brace pushes in a down-up direction; overall, the transmission of the corrective forces to the spine is carefully balanced in such a way as to obtain optimal correction in all three planes of space, without any of the three being allowed to dominate.

As explained at the start, another type of Chêneau brace is also used worldwide; in Italy, we call this the Chêneau 2000: it is an asymmetrical brace that uses expansion chambers. It remains clearly asymmetrical, even externally.  We, on the other hand, prefer to use the symmetrical version of the Chêneau, in order to respect the SPoRT concept mentioned above and also because it favours compliance. Indeed, applying our school of thought, we have obtained, in our patients, the best bracing results recorded anywhere in the world, and this is thanks, in part, to the type of braces we use. Naturally, braces only work if patients actually wear them, and the easier they are to conceal under clothes, the more patients will wear them.

Active self correction and stabilization: an Isico letter to the editor

It has just been published a letter to the editor  “The active self-correction component of scoliosis-specific exercises has results in the long term, while the stabilization component is sufficient in the short term” in the scientific journal Prosthetics and Orthotics International

“This is a comment to the study “Core stabilization exercises versus scoliosis-specific exercises in moderate idiopathic scoliosis treatment” –explains dr. Alessandra Negrini, Isico physiotherapist and author of the letter – the authors of the research compared two groups included Scientific Exercises Approach to Scoliosis (SEAS) and core stabilization. Scoliosis-specific exercise schools like SEAS include two main components: active self-correction (ASC) and stabilization. Consequently, a common intervention was provided to the two groups (stabilization) in this study, while the SEAS group also received ASC”.

Follow-up X-rays were taken after only 4 months. According to the Society on Scoliosis Orthopaedic and Rehabilitation Treatment (SOSORT)/Scoliosis Research Society (SRS) criteria, these results should be classified as a very short-term assessment. No significant difference was found between the two interventions. The patients were more adherent to the brace than to the exercise therapy. “Unfortunately, the authors did not mention if there was a difference in the adherence to bracing between the groups: this variable is expected to impact the results more than the type of exercises -adds dr. Negrini – Experts agree that stabilization exercises are more important during the first treatment phase (when the brace maintains for many hours every day the alignment of the spine and exercises are aimed to counteract muscle impairment). Exercises in ASC are more important in maintaining the obtained results when the brace weaning phase starts, when the patients should live sustaining in correction their spine without the brace support”. 

It is important for the future to determine when to start ASC: immediately (even if it could add nothing to stabilization) or when weaning starts (when it could be too late)?

The full letter: https://pubmed.ncbi.nlm.nih.gov/32524898/