Can scoliosis be treated with exercises?

The answer is yes, and they are indeed fundamental, but sometimes exercises alone are not enough. Whether or not an exercise-based treatment is sufficient depends, above all, on the severity of the curves and the evolutionary potential of the scoliosis itself, which is partly determined by growth.
Therefore, exercises sometimes need to be combined with another treatment, such as bracing. Rigid  brace wearers always need to do specific exercises in order to minimse the side effects of the brace and maximise its corrective impact.
Patients prescribed the Spinecor wrapping system, a dynamic brace, do not need to do any specific exercises since this device allows movement and therefore guarantees the natural trunk muscle strengthening  that favours correction of the spine. 

Scoliosis treatment can be likened to climbing a mountain; a true climber is well aware that the path ahead of him will present obstacles, but he  is confident he will be able to overcome them in order to reach the top.
That is his goal and he is determined to achieve it, whatever it takes and however long it takes him, because he already anticipates the enormous satisfaction he will feel on finally reaching the summit .

The various treatment options can be seen as different steps on a ladder, where the lowest is the one that has the least impact on the individual, but is also the least effective; instead, the highest step represents the very most that can be done in terms of treatment, and the treatment that will have the greatest impact on the youngster’s daily life. 

The ideal therapy is one that allows the best possible results with the least possible impact.

The first step on the treatment ladder is simple observation; at this level the patient needs to attend frequent medical check-ups in order to keep the scoliosis monitored, and the physician needs to be ready to intervene if the need arises.
The next step involves exercises alone, which are sufficient to control scoliosis of mild and mild-medium severity.
At the next level, patients are offered braces consisting of soft bands, and then, if the condition warrants it, braces made of more or less rigid materials.

Sometimes parents immediately want a therapy that, in their view, gives greater guarantees of success, regardless of the impact on their child.
This attitude is generated by the mistaken belief that opting for  the most aggressive therapy will allow the worst outcome to be avoided, and also by the idea that bracing is more convenient .
To return to the metaphor of the mountain, this amounts to starting the ascent running, in the hope of getting to the top more quickly, but it is an approach that may see the climber paying a very high price in terms of his health and even ending up having to end his career early.

Since scoliosis is an evolving disorder, the treatment, too, needs to be constantly evolving: the best strategy is to be ready  to introduce timely changes in response to emerging needs.

It is important to see the treatment from a global perspective: a patient who starts off simply doing exercises, and does them well for a certain number of months, before then being obliged to wear a brace  will at least have avoided some months of brace wearing, which is certainly a good thing.
Changing treatment does not mean that the previous one was unsuccessful, it simply means that it has become apparent that a  stronger method is needed order to win the struggle (like an arm wrestling contest!) with the scoliosis.

What happens when scoliosis is left untreated?

Our paper entitled “The natural history of idiopathic scoliosis during growth: a meta-analysis” was published some months ago in the American Journal of Physical Rehabilitation.
The research focuses on 13 studies in the scientific literature that examine the natural history of idiopathic scoliosis, that is to say, the way scoliosis evolves in the absence of any treatment.

“We conducted a systematic search of the literature in order to identify all published studies dealing with the natural history of idiopathic scoliosis. Our aim was to pool the data in a meta-analysis that might provide insight into disease progression rates” explains Isico physiatrist Dr Francesca Di Felice.

The data in the studies included in our meta-analysis were collected from individuals affected by infantile, juvenile and adolescent forms of idiopathic scoliosis from the time of detection until they were fully grown: these individuals, observed over time, never received any treatment for the condition.

 “Some of the studies included, generally the oldest ones, presented methodological weaknesses, such as failing to provide systematic data on the size of scoliotic curves at the beginning and end of treatment, to distinguish clearly between juvenile and adolescent forms, or to consider outcomes other than rate of progression: aesthetics, humps and sagittal balance, for example” Dr Di Felice goes on. “The meta-analysis revealed high rates of progression for all the forms of idiopathic scoliosis, and the data on infantile scoliosis  showed the highest variability: suffice it to say that the three studies referring to that category showed progression rates ranging from 5 to 80%!

I would say there is now little prospect of adding to the available data on the natural history of scoliosis through new randomised studies, given that it has become impossible, from an ethical point of view, to leave scoliosis patients untreated”.

When the brace turns you strong

Cecilia is 18, and she has been wearing a brace for the past six years. Since she has learned a lot about herself over that time, she has decided to share, in words and pictures, her experience of growing up in a brace. And so here she is, captured with the “friend she loves to hate” in a series of delicate, almost magical, pictures taken by a young photographer.
Let’s hear what Cecilia has to say. 

There was a time when I would never, ever have considered being photographed with my “worst enemy”, but then I met Tatiana Minelli, and changed my mind.

My story begins when I turned 12. It was so hard to accept the prospect of being “locked” in a plastic case for years! I can still remember all the crying, screaming and arguing over it, the sheer desperation I felt at the idea that, once I was wearing my shell, people wouldn’t love me so much, I wouldn’t be accepted, and I would stop receiving all the attention, love and hugs I was used to. 

I had to force myself to take courage and think that, without the brace, my back would eventually give way completely: I had to be prepared to put up with some discomfort now, so that the future me need not suffer. 

I had to re-invent myself, or rather discover a new me. Ever since I was a little girl, I had always loved clothes – drawing them, choosing and matching them –, but now I found myself deciding that I needed to find a way of hiding the brace beneath my clothes. That was my priority, because there was no way I was going to let anyone see it!

My solution was to wear baggy, loose-fitting clothes, far bigger than my true size. It was hard, because when you are that age, you naturally start wanting to show off your figure. The sacrifices and tears that come with having to “befriend” a brace are something that few others can really understand. 

I am so grateful to my parents, my sister and everyone who has always been there for me, no matter what. And that goes for my friends, too. Whatever the occasion, a sleepover, party or trip somewhere, they always knew that I came with a “hidden extra”, and perhaps wouldn’t be able to do all the things they did because it was painful or uncomfortable for me, but they just accepted me, and never made a big deal of it. 

At first, I had to wear the brace all the time, 24 hours a day. Then, as time went, by I was able to reduce, gradually, the number hours I needed to keep it on.

Which brings me to today, and my decision, after eight long years, to finally let people see me in my brace, without any sense of fear or embarrassment and without filters. I have come to realise that I perhaps ought to have let my brace be seen from the start. To paraphrase one of my favourite writers, I should have risen above the “problem” that used to make me feel so awkward, and accepted it with a lighter heart.  

Today, eight years on, I realise that our true value lies in the things that make us different, and that it is my brace that has made me the stronger person that I am today. But wearing a brace has been just the start of my long journey. I am soon to embark on the next phase, and those who know me know that I am again going to have to draw on my reserves of strength and determination. But let’s take things one step at a time!

Thank you, Tatiana Minelli, for the pictures of me and the friend I loved to hate!

P.S. Choosing not to show pain doesn’t mean you don’t feel it. 

Scoliosis in the elderly: why exercises are important

When talking about scoliosisone often immediately thinks of a condition that affects young people, but that is not always the case. In a study of 554 people aged between 50 and 84 years, scoliosis was diagnosed in 70% of cases, showing that this is also a common condition in older people, too.However, there are certain distinctions to be drawn, and it is important to understand when scoliosis in an older person first developed. This is possible only if the patient is able to supply previous X-rays that document the period of onset.

Scoliosis in the elderly can be divided into three types.

– Primary degenerative scoliosis, also known as the “de novo” form, is scoliosis that occurs as a result of disc degeneration, and it causes considerable pain and stiffness. This makes it very difficult for the patient to create curves able to compensate for the lateral or forward bending of the spine inevitably seen in those affected by this condition.  

  Progressive idiopathic scoliosis in adults is scoliosis that they have had since they were  young, as it is the form that is diagnosed in adolescence. With this type of scoliosis it is important to bear in mind a couple of parameters, because the likelihood of the condition worsening depends on the severity of the curve.

According to literature data, scoliosis with a Cobb angle greater than 50° will almost inevitably worsen; instead, a curve measuring less than 30° will give little cause for concern in adulthood.

–  Secondary degenerative scoliosis can have various causes, some found directly in the patient’s back (such as a lumbosacral abnormality) and others (such as hip disease) found elsewhere in the body. Metabolic disorders and osteoporosis leading to multiple fractures are also among the causes of this type of scoliosis.

Regardless of their causes, all these forms of elderly scoliosis have certain characteristics in common.

Elderly people affected by scoliosis inevitably experience postural changes. Particularly prominent is forward or lateral bending of the back: in other words, their back seems to be “falling” forward or to one side.

These changes can result in loss of the normal inward curvature (lordosis) of the lower back, causing the trunk to bend forwards and leading to accentuated dorsal kyphosis.

A further characteristic of all these types of scoliosis is pain, and it is one of the main reasons why individuals with elderly scoliosis decide to try to do something in order to improve their back and, as a result, their overall health. 

Another type of alteration observed in elderly scoliosis is a lateral collapse of the spine caused by an increase in the scoliotic curve that the patient is unable to counter; this results in a lateral imbalance.

To try to improve the situation, it is necessary to undertake a course of rehabilitation involving specific exercises for the spine.

These exercises have several purposes; the main one is to reduce pain. The therapist will  “explore” the patient’s back, performing assessments and seeking to identify pain-free positions that can be taken as a starting point both for providing some relief and for starting to plan a programme of work designed to help the patient’s back cope with more active exercises.

As with youngsters, with elderly people, too, it is crucial to teach self-correction, even though, in this case, the objectives will be different.
An elderly person with scoliosis, by definition, has a stiff back and can therefore have mobility problems; obviously in these circumstances self-correction should not be seen as a means of obtaining the best possible correction of the back, but rather as a way of supporting it and countering, as far as possible, the abnormalities that have developed.  

In the presence of lateral bending, the aim will be to support the back as much as possible against the direction of the curve, whereas forward bending will be tackled by attempting to restore lordosis and mobility of the lumbar spine, so as to move the patient’s back into an upright position. A key element in both these cases is an axial extension of the spine, which serves to reduce dorsal kyphosis and open, as much as possible, the scoliotic curve.

However, when embarking on a rehabilitation pathway, patience is always the key, because exercises, unlike drugs, cannot eliminate or reduce pain in the space of a few hours.

The very term “pathway” implies the need to allow a certain amount of time in order for the desired results to appear.
In fact, the treatment demands not only patience but also constancy over time, as patients have to do much of the work on their own, having first been taught the exercises and instructed to do them independently at home.

It is also important not to make the mistake of becoming complacent as soon as there is some improvement; indeed, it is crucial to continue following the programme consistently so as to consolidate the results achieved.

All this is the only way of obtaining the kind of results that, over time, will lead to improvements in different areas of the patient’s life.

The first positive result perceived by the patient will be a reduction of the pain experienced; subsequently, he/she will become aware, both in the course of the day, but also when standing in front of a mirror, that his/her posture has also improved.

An equally important development will be better general physical conditions and a better quality of life, as the patient, starting to feel better and happier about his/her appearance, will start resuming his/her previous activities.

The specific exercises prescribed are very important for preventing/limiting possible deterioration over the years, and patients will therefore need to go on doing them for the rest of their lives: since these are patients who have difficulty supporting their backs, it is essential to work on strengthening all the relevant physical abilities. And this can be achieved solely and exclusively through specific exercises.
All the other treatments that exist for scoliosis have other objectives, e.g. to provide pain relief (drugs) or to replace lost function (bracing or surgery), and they are, in any case, more invasive.

Spine Week 2020

Registration is now open for Spine Week 2020 which will be held from April 27th to May 1st in Melbourne, Australia. It will be possible to register at a reduced rate until February 15th. The 15th International SOSORT meeting will also be held during SpineWeek from 27 to 29 April.

The first SpineWeek meeting which was held in Porto, Portugal in 2004. It was well received by individual participants, the involved scientific spine societies and by the supporting MedTech industry.

Three more SpineWeeks followed: Geneva (Switzerland) in 2008, Amsterdam (The Netherlands) in 2012 and Singapore in 2016.

One of the remarkable evolutions noted from one SpineWeek to the next, was the increase of participants coming from Asia. This incited the SpineWeek committee to move east for the 2020 SpineWeek meeting.

SpineWeek meetings have been at the origin of many a scientific collaboration bringing together clinicians and scientists from around the world and from very different scientific societies, such as the International Society for the Study of the Lumbar Spine (ISSLS), the North American Spine Society (NASS) .

Same language, same treatment

www.scoliosi.org: the Isico blog that gives patients a voice!

Over the past 13 years or more, we have published dozens of posts and thousands of comments on our forum dedicated to scoliosis.
The Isico forum is a dedicated space where patients can ask questions and swap experiences, but it is also a place where those involved in treating scoliosis can take a more in-depth look at a series of topics and also engage with the patient.  Here is one of our published posts.

ISICO in Italy: “Same language, same treatment”

ISICO works with many operators – physicians and rehabilitation specialists – in clinics covering most of Italy. Sometimes patients aren’t sure (and will therefore ask us) which specialists or centre they should contact. It actually makes no difference, since we strive daily to ensure that each of our clinics offers exactly the same high level of professionalism and quality of care. Everyone in the ISICO family speaks “the same language” and pursues the same goals. For us, who work here, this goes without saying, as this is our established modus operandi.

Scoliosis is not only an infrequent condition (it affects 2 to 4 people in every 100), it can also be devious, that is to say unpredictable! Highly aggressive forms are even rarer. The challenge for the physician is to understand whether your scoliosis is going to be as gentle as a kitten or as aggressive as a tiger that needs to be caged. It follows that only a physician with experience of many cases of scoliosis is fully equipped to interpret the multiple aspects of this complex disease.

According to the relevant international guidelines (http://www.scoliosisjournal.com/content/7/1/3),  the specialist who deals with the treatment of scoliosis must be an expert and must comply with the following criteria:

1. an apprenticeship of at least 2 years alongside a physician experienced in the treatment of vertebral growth disorders (that is, who has at least 5 years of experience in the field);

2. at least two consecutive years of experience in the treatment of scoliosis with a brace;

3. at least one brace prescription per week (corresponding to about 45 per year) in the last two years;

4. At least 4 examinations per week of subjects with scoliosis (corresponding to about 150 per year, for at least two consecutive years).

Consequently, what usually happens is that the expert physician sees patients in large cities that are easily reached and moves from one city to another in order to be able to see a sufficient number of cases and therefore become an “expert.” This is the traditional pattern: physicians move from city to city, and patients often have to travel from small towns to big cities in order to have a consultation with an expert physician.

When ISICO was founded it only had one physician who used to travel around Italy, seeing patients. But then the number of physicians increased, and so did the number of ISICO clinics. But the original concept has remained the same: our physicians travel around, in order to examine patients in other branches; they also regularly frequent the Milan clinic, not only to carry out examinations but also, and above all, to keep up to date with their colleagues and exchange information and opinions.

The therapists, too, work in multiple clinics and regularly meet up, among themselves and also with the physicians, to get updates and to guarantee the teamwork that characterises ISICO.

All this is also facilitated by the use of sophisticated software that, on the one hand, allows constant communication between all the operators involved and constant monitoring of each patient’s situation, and on the other, ensures consistency in terms of the assessment methods and practices adopted.

Even the orthopaedic technicians who work with ISICO as external consultants meet up regularly in Milan: on these occasions, they also see physicians and therapists to discuss the braces our patients are being offered.

Every day we work to build a close-knit and competent team and to organise our work in such a way as to provide patients with the best care available and with as little travelling as possible.

Each ISICO clinic, therefore, has the same characteristics as the others: in Rome, you can see the same physician you would have seen on another day in Milan; similarly, the physician who was in Pescara yesterday is in Asti today. The same goes for the therapists, and this guarantees a consistently high level of performance quality everywhere.

At ISICO, everyone speaks “the same language”, uses the same clinical software, and pursues the same goals: therefore, you don’t need to worry if, when you come to try out your brace, you do not find the same physician who prescribed it.

The experience of our physicians and therapists is guaranteed by the large number of patients treated and by the ongoing professional exchanges between all the ISICO team members.

Adult scoliosis: bracing to reduce back pain

In adult scoliosis patients with back pain, brace treatment reduced the pain at 1 month, and the improvement was found to be stable at 6 months. This is what emerged from the first prospective study on this topic. The research, by Isico, was published in Prosthetics and Orthotics International and entitled “Can bracing help adults with chronic back pain and scoliosis? Short-term results from a pilot study”.  

“We included 20 patients, all with severe scoliosis” explains Dr Fabio Zaina, physiatrist at Isico. All had back pain secondary to scoliosis and were treated with the Tri-Point brace, which they wore for 1-2 hours a day. Our aim was to establish whether bracing in adults can reduce pain and improve quality of life”.

Developed in the USA, the Tri-Point is a prefabricated device that, however, can be adjusted to the single patient. 

“This is the first time we have conducted this kind of research in adults” Dr Zaina goes on, “and the results were very positive: improvements are seen very early on, with the pain diminishing and quality of life remains constant. What is more, considering the brace wearing time (1-2 hours a day), it is possible that wearing it for a longer time each day might produce even greater benefits”. 

Plumb line values and radiographic measurement

An Isico study entitled “Clinical Evaluation of Spinal Coronal and Sagittal Balance in 584 Healthy Individuals: Normal Plumb Line Values and their Correlation with Radiographic Measurements” has just been published in the journal Physical Therapy.

The aim of the research was to assess plumb line distances (PDs) in a large, healthy population in an age range representative of the adolescent population with spinal deformities, and to correlate the resulting normative values with X-ray measurements.

In fact, the scientific literature lacks normal data from a healthy population (i.e. without spinal disease) that can be used to establish what constitutes a correct sagittal profile and thus to identify, in patients, the presence of certain abnormalities.

The study involved a very large sample: 584 healthy individuals (341 females) with X-rays showing no spinal deformities.

The participants were not randomly chosen from the general population: all were X-rayed because they were suspected of having a spinal deformity.

The whole sample (OVERALL) was divided into five groups, classifying all those aged 10 or over on the basis of their proximity to puberty, as follows: 6-9 years old (n = 106); >10 years, Risser 0 with triradiate cartilage open (n = 129) or closed (n = 104); Risser 1-2 (n = 126); and Risser 3-5 (n = 119).

It is worth recalling that PDs are widely used in conservative clinical practice to evaluate the sagittal shape of the spine.
Using a plumb line it is possible to evaluate the frontal and lateral profile of the trunk: in evaluation of the frontal profile, with the individual standing, the first cervical vertebra (visible at the base of the neck) is identified and the plumb line is dropped from this point; it should naturally fall in the gluteal cleft (groove between the buttocks). Any displacement (to the right or left) from this reference indicates the presence of lateral bending of individual’s trunk, a sign that can indicate scoliosis.
The lateral  profile of the trunk, too, is evaluated with the individual standing; in this case, the  plumb line is positioned so that it touches the point of maximum protrusion of the dorsal area (between the shoulder blades).
The PDs are then measured at the points where the plumb line is most distant from the individual’s back. These measurements may indicate the presence of a curved spine.

PDs were evaluated by maintaining a tangent to the thoracic kyphosis apex at C7, T12, L3, and S2. Sagittal index (C7 + L3), and sagittal and coronal balances (C7 related to S2) were calculated.

This study showed a correlation between the plumb line data and the radiographic measurements, and also provided normative data to be used in clinical practice.

“In the near future, plumb lines will likely make way for lasers, whose use has already been validated by a study” concluded Alessandra Negrini, physiotherapist and one of the authors of the study “At Isico, we have already introduced the laser method” she added. “There are advantages and disadvantages to both: the laser beam is static, and this could distort the data if the child moves; the plumb line on the other hand follows the child’s movements: if the child moves so does the plumb line”.

Surgical Scoliosis: when to operate

In the presence of a curve measuring more than 50 Cobb degreesscoliosis is termed “surgical”. Unfortunately, the likelihood of surgical scoliosis worsening, even in adults, and giving rise to pain, disability and reduced quality of life, is very high.

What to do when scoliosis occurs in young children (0-3 years) and in cases of juvenile scoliosis (3-12 years)

Being typically associated with a high potential for worsening, infantile and juvenile scoliosis have, in the past, always tended to be considered surgical cases from the outset. Today, though, we know that there may be some hope of avoiding surgery in these cases,  provided the affected individual adheres to a lengthy course of conservative treatment that begins with the onset of the scoliosis and ends only when he/she has finished growing. Conservative treatment is often recommended in the early stages of scoliosis in any case, even when there is a very high likelihood that surgery will eventually be required.
In such cases, this initial conservative treatment is a means of supporting these young patients until they reach the moment deemed most opportune for performing the surgery, which, in this way, will consist of a single and definitive operation.

What to do when scoliosis is already surgical in adolescence (12-14 years)

 In early adolescence, when the process of bone maturation is not yet complete, a scoliotic curve is at very high risk of worsening. If the affected youngster has never previously tried an appropriate conservative treatment programme (full-time bracing and specific exercises), it may well be worth considering pursuing this avenue and then, together with the medical specialist, re-assessing the situation in the light of the results achieved after the first few months of treatment.

We already know that a scoliotic curve classed as surgical can often be stabilised, and sometimes even improved, through conservative treatment.

Conservative treatment is, as we constantly stress, very protracted and demands considerable commitment and many sacrifices. But it is also a treatment with a beginning and an end, which means that, sooner or later, the brace will become a thing of the past! When young patients, together with their parents, decide to go down this route, it is crucial that their decision is, as far as possible, an informed choice.
For this reason, it is important that they consider speaking to a specialist surgeon (which is not to say that they will automatically be put on a waiting list for the operation!). The decision on whether or not to be treated surgically remains an entirely personal one, but, in order to make it, patients and families need to be informed of the risks and benefits of the operation, and informed about the most innovative surgical techniques available, and about the post-surgical recovery: how long it will take and what to expect.
Given that it is impossible to know, beforehand, whether the benefits of the surgery will ultimately justify this course of action, only armed with all this information is it possible to make a truly informed decision.

What to do about surgical scoliosis in 17-20 year olds

Young people reach bone maturity by late adolescence/early adulthood. At this age, therefore, the risk of growth-related worsening of scoliosis disappears.
Conversely, there is still a risk that the condition may worsen as a result of likely instability of the curves, which remains.

Scoliosis surgery is never a life-saving procedure, and therefore should never be treated as an emergency.

It is always useful to seek the opinion of a surgeon, but there is no reason why the patient, having done so, should not choose to wait, taking the time to verify, through periodic checks with his/her medical specialist, the stability, or otherwise, of the situation.

Should an evolution of the curve occur, it will still be possible to undertake a specific course of exercises and assess, over time, whether these are sufficient to stop further progression of the curve, before deciding whether or not to opt for surgery.

What to do about surgical scoliosis in adults

In adults, the extent of the curve, measured in Cobb degrees, is no longer the main parameter considered when deciding whether or not to opt for surgery.
When examining X-rays taken in adults, attention is paid mainly to the sagittal plane, given that adults (unlike youngsters) are more likely to develop a more forward-bent posture.
The other parameters to be taken into consideration are pain, disability and quality of life. Given that the surgery carries risks, and it is not possible to know in advance whether the benefits of the surgery will be great enough to justify choosing this course of action, in adults it tends to be chosen only in the presence of a highly debilitating level of pain that is seriously compromising the patient’s quality of life.

In this case, too, it is possible first to undertake  a specific conservative treatment, in order to monitor how, over time, it affects the stability of the curve and the level of pain and disability. In this way, the possibility of surgery can be weighed up in the light of its results.

Sforzesco: the video!

Sforzesco brace in a new video!

The Sforzesco brace has two particular boasts: it is “made in Italy” and it is also tailor made. It now features in a new video, created on the basis of a brief extract from a lesson given by Prof. Stefano Negrini during the 2018 World Master Course. But this video isn’t only about the brace and its characteristics; above all, it features patients who wear the Sforzesco and show that they can “do pretty much everything in it” !

Developed in 2004 by Isico, the Sforzesco brace was designed to replace the use of plaster casts and offer patients a solution allowing them freedom of movement and the ability to get on with their everyday activities, including any sporting activities. Data collected through our research studies, published in the international literature, show that the Sforzesco is just as effective as plaster casts; moreover, patients find it much more bearable and therefore accept it more readily, not least because it can be adapted to their individual needs.
Why not take a look at the video!